Giving Tuesday December 1, 2015

GIVING TUESDAY
The New Jersey ME/CFS Association has been working on behalf of those with this disease since 1995.
Recent accomplishments include:
•Offering HS and Medical Student/Resident Scholarships
•Communicating through NJME/CFSA Website & Facebook page.
•Help Desk – dedicated volunteers use precious energy to respond to requests.
•Information for families experiencing school issues
•Educating healthcare providers by exhibited at the AAP/NJ (NJ pediatricians’ organization) School Health Conference.
•Meeting with the federal agencies via conference calls
•Collaborating with other state and national organizations
•Sponsoring support groups
•Advocating for ME/CFS on the national level.
•CFSAC (CFS Federal Advisory Committee) non-voting member (06/13-06/15)
Please consider making a donation to help us continue the journey. Donations can be online at this website (upper right) or mail to:
NJME/CFSA
PO 477
Florham Park, NJ 07932

ME/CFS Genes Study

Dr. Nancy Klimas is embarking on a Gene Study of ME/CFS. Please see the following link for information about the study.

http://www.nova.edu/nim/research/mecfs-genes.html

Bergen County Support Group – change of meeting site

NOTE:  Beginning with the October 18th Meeting, the Bergen ME/CFS/FM Support group will take place at Hackensack University Medical Center North (formerly Pascack Valley Hospital) on Old Hook Road, Westwood.  Some of you may recall that our Support Group used to meet at Pascack Valley Hospital many years ago.

Parking close to the front door – No stairs to climb – Free parking.

Meeting Room located on the main level immediately to the right of the door. We hope you will join us in October. Watch for future emails and updates.

You can find directions on the Hackensack University Medical Center North website http://www.hackensackumc.org/pascackvalley.  Look for the Pascack Valley location on Old Hook Road –NOT the Hackensack location.

Thank you for your patience and continued participation.
Your Support Group Leaders

Art Contest – for new International Pediatric Primer

PA Primer Art Contest Announcement 2015-05

Scholarship Applications

Medical Scholarship & High School Scholarship Applications have been posted on the Scholarship page

Severely ill Info

There have been reports of problems with the links below.  Try the ones here or copy and past into address bar.

Center.of.CARE@gmail.com Copy & paste address onto email address line.

http://www.njmecfsa.org/research-opportunities-2

http://pandoraorg.net/Pandora_Delivers.html

Severely Ill Info 2015-03 Cropped

Survey Request

MECFS_Patient_Quality_of_Medical_Care_Survey 2015-02A

Institute of Medicine Report issued 2/10/2105

Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness

Read the Report

See a report brief here

Report key facts here

Summaries can be found on many sites including

The JAMA website: http://jama.jamanetwork.com/article.aspx?doi=10.1001/jama.2015.1346

The New York Times  http://well.blogs.nytimes.com/2015/02/10/chronic-fatigue-syndrome-gets-a-new-name/?_r=3%3A%2F%2Fwell.blogs.nytimes.com%2F2015%2F02%2F10%2Fchronic-fatigue-syndrome-gets-a-new-name%2F%3F_r%3D3

National Academy of Sciences

“Chronic Fatigue Syndrome/Myalgic Encephalomyelitis Is a Legitimate Disease That Needs Proper Diagnosis and Treatment, Says IOM” (National Academy of Science)

2105 High School Scholarship

NJMECFSA HS Scholarship Announcement 2015

Click to access full application details and announcement.

IACFSME Primer (Revised 2014)

The ME/CFS Primer for Clinical Practitioners (2014 revision) is available in both print and download versions at the IACFSME website. Click here. Primer