Advocates Group

We are part of this coalition that is actively working to bring about good changes at the NIH and other HHS departments for the benefit of those with ME/CFS.

Click here to read Announcement Dec 22 2015

 

 

A Gift of Love and Support

NJMECFSA Gift Card 2015-12

Memberships can be purchased online at this site or Membership form for mailing

Research Published

NJME/CFSA Trustee Emeritus and independent researcher, Rosemary Underhill, has a new paper published online, December 2105 at this link. doi.org/10.1016/j.mehy.2015.10.011

There is an abstract as well as the full article, “Myalgic encephalomyelitis, chronic fatigue syndrome: An infectious disease”

Congratualtions to Dr. Rosemary Underhill!

Medscape posting of 12/03/2015

Medscape published today -” The Year in Medicine 2015: News That Made a Difference.: ME/CFS and the IoM report made the list. See #5

http://www.medscape.com/features/slideshow/public/year-in-medicine2015?src=wnl_edit_tpal&uac=36722FV

Giving Tuesday December 1, 2015

GIVING TUESDAY
The New Jersey ME/CFS Association has been working on behalf of those with this disease since 1995.
Recent accomplishments include:
•Offering HS and Medical Student/Resident Scholarships
•Communicating through NJME/CFSA Website & Facebook page.
•Help Desk – dedicated volunteers use precious energy to respond to requests.
•Information for families experiencing school issues
•Educating healthcare providers by exhibited at the AAP/NJ (NJ pediatricians’ organization) School Health Conference.
•Meeting with the federal agencies via conference calls
•Collaborating with other state and national organizations
•Sponsoring support groups
•Advocating for ME/CFS on the national level.
•CFSAC (CFS Federal Advisory Committee) non-voting member (06/13-06/15)
Please consider making a donation to help us continue the journey. Donations can be online at this website (upper right) or mail to:
NJME/CFSA
PO 477
Florham Park, NJ 07932

ME/CFS Genes Study

Dr. Nancy Klimas is embarking on a Gene Study of ME/CFS. Please see the following link for information about the study.

http://www.nova.edu/nim/research/mecfs-genes.html

Bergen County Support Group – change of meeting site

NOTE:  Beginning with the October 18th Meeting, the Bergen ME/CFS/FM Support group will take place at Hackensack University Medical Center North (formerly Pascack Valley Hospital) on Old Hook Road, Westwood.  Some of you may recall that our Support Group used to meet at Pascack Valley Hospital many years ago.

Parking close to the front door – No stairs to climb – Free parking.

Meeting Room located on the main level immediately to the right of the door. We hope you will join us in October. Watch for future emails and updates.

You can find directions on the Hackensack University Medical Center North website http://www.hackensackumc.org/pascackvalley.  Look for the Pascack Valley location on Old Hook Road –NOT the Hackensack location.

Thank you for your patience and continued participation.
Your Support Group Leaders

Art Contest – for new International Pediatric Primer

PA Primer Art Contest Announcement 2015-05

Scholarship Applications

Medical Scholarship & High School Scholarship Applications have been posted on the Scholarship page

Severely ill Info

There have been reports of problems with the links below.  Try the ones here or copy and past into address bar.

Center.of.CARE@gmail.com Copy & paste address onto email address line.

http://www.njmecfsa.org/research-opportunities-2

http://pandoraorg.net/Pandora_Delivers.html

Severely Ill Info 2015-03 Cropped