Upcoming Event in Massachusetts

The Massachusetts CFIDS/ME & FM Association Fall 2013 Educational Lecture ”CFS Research: Recent Progress and Challenges” will be held on Saturday, November 2, 2013 at the Morse Institute Library in Natick, MA.  Keynote speaker – Anthony Komaroff, M.D., Harvard Medical School Professor, Clinician and Researcher        The lecture is open to the public and  seating begins at 12:30 p.m. Light refreshments will be served.  For more information & registrations, visit www.masscfids.org.

Proclamation

Proclamation 2013

Survey

Below is a link to a survey that will provide information to the FDA about ME/CFS patients in an objective format. Details are available at the link.  The survey link is at the end.

The survey should take 30-40 minutes to fill out, depending on how many comments you have. Text boxes on the survey look small but will expand to fit what you type in. Since this is an anonymous survey, the program does not allow us to save partially completed responses. You may want to look at the survey first, think about/ write down your choices, and then return to fill it out when you are ready. You may also choose to have someone else help fill in your answers for you after you have informed them about your choices.

If you want your answers to be part of the results shared at the FDA meeting, please complete the survey by APRIL 17, 2013. The survey will remain open until May 10, 2013 and all responses submitted will be included in the final report to FDA in August.

THANK YOU for your participation!

The survey and complete details are at: http://kwiksurveys.com/s.asp?sid=mnwykzr9g2ae1l5112627

We recently learned that there was an issue when accessing this site from a mobile device.  The issue has been corrected and will be monitored to hopefully prevent future problems.  Thank you to the person who reported the issue.

Stakeholders meeting

“FDA Workshop on Drug Development for Chronic Fatigue Syndrome (CFS) and Myalgic Encephalomyelitis (ME)”

April 25-26, 2013

This is a FIRST for ME/CFS.!

For your information, FDA has posted a draft agenda for their
upcoming Workshop on CFS Drug Development at

http://www.fda.gov/Drugs/NewsEvents/ucm319188.htm

Upcoming Mass CFIDS/ME & FM Association Lecture

SAVE THE DATE – Saturday April 6, 2013

SPRING LECTURE “THE SCIENCE OF SLEEP”

The Massachusetts CFIDS/ME & FM  Association is pleased to announce Jo Solet, Ed.M., Ph.D, OTR/L as the keynote  speaker. See  http://www.masscfids.org for full details.

Research Opportunities

Shared by CFIDS  2/20/2013

Use the link below to view details for multiple studies

CFIDS Postings

Fall Conference DVDs Available

Chronic Fatigue Syndrome (ME/CFS) Conference:

Progress in Research, Diagnosis and Treatment

October 21, 2012.

Host: Susan M. Levine, MD; Moderator: Malcolm Schwart

z, DO; Speakers: Lucinda Bateman, MD; Natalia Palacios, ScD;  Wilfred van Gorp, PhD, ABPP;  Susan M. Levine, MD

4 disk set   Price: $15 per set  (Price was held to that of a 3 disk set.)

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Please Support the NJCFSA with a Donation

Please help NJCFSA continue to help the ME/CFSA community. Thank you for your generosity.

Donations can be made online at NJCFSA store in right column.

or mailed to:

NJCFSA

PO Box 477

Florham Park, NJ 07932

 

Two Primers available

CFS/ME A Primer for Clinical Practitioners – International Association CFS/ME (IACFSME)

International Consensus Primer for Medical Practitioners – International Consensus Panel (ICC)