Posts belonging to Category Breaking News

Advocates Group

We are part of this coalition that is actively working to bring about good changes at the NIH and other HHS departments for the benefit of those with ME/CFS. Click here to read Announcement Dec 22 2015    

A Gift of Love and Support

Memberships can be purchased online at this site or Membership form for mailing

Research Published

NJME/CFSA Trustee Emeritus and independent researcher, Rosemary Underhill, has a new paper published online, December 2105 at this link. doi.org/10.1016/j.mehy.2015.10.011 There is an abstract as well as the full article, “Myalgic encephalomyelitis, chronic fatigue syndrome: An infectious disease” Congratualtions to Dr. Rosemary Underhill!

Giving Tuesday December 1, 2015

GIVING TUESDAY The New Jersey ME/CFS Association has been working on behalf of those with this disease since 1995. Recent accomplishments include: •Offering HS and Medical Student/Resident Scholarships •Communicating through NJME/CFSA Website & Facebook page. •Help Desk – dedicated volunteers use precious energy to respond to requests. •Information for families experiencing school issues •Educating healthcare […]

ME/CFS Genes Study

Dr. Nancy Klimas is embarking on a Gene Study of ME/CFS. Please see the following link for information about the study. http://www.nova.edu/nim/research/mecfs-genes.html

Bergen County Support Group – change of meeting site

NOTE:  Beginning with the October 18th Meeting, the Bergen ME/CFS/FM Support group will take place at Hackensack University Medical Center North (formerly Pascack Valley Hospital) on Old Hook Road, Westwood.  Some of you may recall that our Support Group used to meet at Pascack Valley Hospital many years ago. Parking close to the front door – […]

Scholarship Applications

Medical Scholarship & High School Scholarship Applications have been posted on the Scholarship page

Severely ill Info

There have been reports of problems with the links below.  Try the ones here or copy and past into address bar. Center.of.CARE@gmail.com Copy & paste address onto email address line. http://www.njmecfsa.org/research-opportunities-2 http://pandoraorg.net/Pandora_Delivers.html

Survey Request

Institute of Medicine Report issued 2/10/2105

Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness Read the Report See a report brief here Report key facts here Summaries can be found on many sites including The JAMA website: http://jama.jamanetwork.com/article.aspx?doi=10.1001/jama.2015.1346 The New York Times  http://well.blogs.nytimes.com/2015/02/10/chronic-fatigue-syndrome-gets-a-new-name/?_r=3%3A%2F%2Fwell.blogs.nytimes.com%2F2015%2F02%2F10%2Fchronic-fatigue-syndrome-gets-a-new-name%2F%3F_r%3D3 National Academy of Sciences “Chronic Fatigue Syndrome/Myalgic Encephalomyelitis Is a Legitimate Disease That Needs Proper Diagnosis and Treatment, […]