Posts belonging to Category Breaking News

Giving Tuesday December 1, 2015

GIVING TUESDAY The New Jersey ME/CFS Association has been working on behalf of those with this disease since 1995. Recent accomplishments include: •Offering HS and Medical Student/Resident Scholarships •Communicating through NJME/CFSA Website & Facebook page. •Help Desk – dedicated volunteers use precious energy to respond to requests. •Information for families experiencing school issues •Educating healthcare […]

ME/CFS Genes Study

Dr. Nancy Klimas is embarking on a Gene Study of ME/CFS. Please see the following link for information about the study. http://www.nova.edu/nim/research/mecfs-genes.html

Bergen County Support Group – change of meeting site

NOTE:  Beginning with the October 18th Meeting, the Bergen ME/CFS/FM Support group will take place at Hackensack University Medical Center North (formerly Pascack Valley Hospital) on Old Hook Road, Westwood.  Some of you may recall that our Support Group used to meet at Pascack Valley Hospital many years ago. Parking close to the front door – […]

Scholarship Applications

Medical Scholarship & High School Scholarship Applications have been posted on the Scholarship page

Severely ill Info

There have been reports of problems with the links below.  Try the ones here or copy and past into address bar. Center.of.CARE@gmail.com Copy & paste address onto email address line. http://www.njmecfsa.org/research-opportunities-2 http://pandoraorg.net/Pandora_Delivers.html

Survey Request

Institute of Medicine Report issued 2/10/2105

Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness Read the Report See a report brief here Report key facts here Summaries can be found on many sites including The JAMA website: http://jama.jamanetwork.com/article.aspx?doi=10.1001/jama.2015.1346 The New York Times  http://well.blogs.nytimes.com/2015/02/10/chronic-fatigue-syndrome-gets-a-new-name/?_r=3%3A%2F%2Fwell.blogs.nytimes.com%2F2015%2F02%2F10%2Fchronic-fatigue-syndrome-gets-a-new-name%2F%3F_r%3D3 National Academy of Sciences “Chronic Fatigue Syndrome/Myalgic Encephalomyelitis Is a Legitimate Disease That Needs Proper Diagnosis and Treatment, […]

2105 High School Scholarship

NJMECFSA HS Scholarship Announcement 2015 Click to access full application details and announcement.

IACFSME Primer (Revised 2014)

The ME/CFS Primer for Clinical Practitioners (2014 revision) is available in both print and download versions at the IACFSME website. Click here. Primer

Research Tab Updated 10/12/2014

Click on Research Opps above.   IMPORTANT Effective September 1, 2014, the NJCFSA Helpline phone was discontinued and replaced by email address that can be used to ask questions.   For those who do not have email, perhaps you can have a friend send a note on your behalf or use a computer at a library.  Include your […]