Posts belonging to Category Advocacy

Institute of Medicine Report issued 2/10/2105

Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness Read the Report See a report brief here Report key facts here Summaries can be found on many sites including The JAMA website: http://jama.jamanetwork.com/article.aspx?doi=10.1001/jama.2015.1346 The New York Times  http://well.blogs.nytimes.com/2015/02/10/chronic-fatigue-syndrome-gets-a-new-name/?_r=3%3A%2F%2Fwell.blogs.nytimes.com%2F2015%2F02%2F10%2Fchronic-fatigue-syndrome-gets-a-new-name%2F%3F_r%3D3 National Academy of Sciences “Chronic Fatigue Syndrome/Myalgic Encephalomyelitis Is a Legitimate Disease That Needs Proper Diagnosis and Treatment, […]

Call for Action

===============  Call For Action  ===============  To:  All ME/CFS Patients, Loved Ones and Patient Groups     April 23, 2012  From:  New Jersey Chronic Fatigue Syndrome Association  Subject:   Request FDA Stakeholder Meeting for ME/CFS For decades, ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) has devastated the lives of patients and our loved ones, leaving us with an alarmingly low quality […]