Posts belonging to Category Advocacy

Institute of Medicine Report issued 2/10/2105

Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness Read the Report See a report brief here Report key facts here Summaries can be found on many sites including The JAMA website: The New York Times National Academy of Sciences “Chronic Fatigue Syndrome/Myalgic Encephalomyelitis Is a Legitimate Disease That Needs Proper Diagnosis and Treatment, […]

Call for Action

===============  Call For Action  ===============  To:  All ME/CFS Patients, Loved Ones and Patient Groups     April 23, 2012  From:  New Jersey Chronic Fatigue Syndrome Association  Subject:   Request FDA Stakeholder Meeting for ME/CFS For decades, ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) has devastated the lives of patients and our loved ones, leaving us with an alarmingly low quality […]