Welcome to NJCFSA

We are patients and families with Chronic Fatigue Syndrome and we are here to support, inform and help you to deal with this serious illness. Follow the links below for quick answers to Frequently Ask Questions, or scroll down for recent news items featuring NJCFSA and developments in the CFS community. Contact information can be found at the bottom of this page. You can also explore our site using the navigation pane at left. Please show your support for what we do by joining NJCFSA now. Fill out and send in a membership form today.

Call Our Helpline number 1-888-835-3677during business hours


NJCFSA Needs Your Support - Donate Now!
Click Here for more information

Donate using PAYPAL, the Secure Online Payment Service.
For more information, click HERE


CFS News Flash - Latest Breaking News:

More information about the NJCFSA Medical Student Scholarship program and how you can support it can be found HERE.

A resolution encouraging the establishment of the NeuroEndocrineImmune (NEI) Center™, the first research center in the state of New Jersey dedicated to understanding and treating chronic neuroendocrineimmune (NEI) illnesses which includes ME/CFS and Fibromyalgia, was voted on and passed June 10th.  To be based in Newark, New Jersey, the NEI Center™ is a community patient-driven project of P.A.N.D.O.R.A, (Patient Alliance for Neuroendocrineimmune Disorders Organization for Research & Advocacy, Inc) in partnership with the Lanford Foundation-Lifelyme™, Inc.

Visit the NEI Center™ web site at www.neicenter.com

National Institute of Allergy and Infectious Diseases (NIAID)
Communications on XMRV Research
with NJCFSA Trustee Emeritus Mary Ellen McNamara Here

Click here for a copy.

*****

Congratulations to the 2009 College Scholarship winner Alexandra Volper

The NJCFSA College Scholarship Committee is proud to announce that Alexandra Volper from Point Pleasant, N.J., is our 2009 scholarship winner.
Alexandra attends Point Pleasant Borough High School and is going to attend Ocean County College, Toms River, N.J. in the Fall.

Read Alexandra's winning essay and previous winning essays on the Essays Page.

 


Results of the2008 May Gala Benefit


NJCFSA has joined the H&R Block Non-Profit Program. Click on the banner below to find out how to help raise money for NJCFSA.


Barbara Comerford, NJCFSA member and former trustee, testifies before CFSAC

 A copy of her testimony on educational accommodations for pediatric can be foundhere.


NJCFSA Trustee Dr. Kenneth Friedman grants part two of his interview series on ME/CFS Research:http://phoenix-cfs.org/InterviewFriedmanResearch.htm

Part Three of the interview is here: http://phoenix-cfs.org/IntFriedIIIAdv.html
 


 
New Research Study Seeks Young CFS Patients
 
Dr. Julian Stewart, director of theCenter for Pediatric Hypotension is looking for CFS patients aged 15 to 29 to join a study investigating Postural Tachycardia Syndrome (POTS).
Click here for more information
 

New Pediatric Case Definition Published

A new case definition from the International Association for CFS/ME has been published in the Journal of CFS. Copies of the definition and articles on Pediatric CFS by NJCFSA Trustees Drs. Kenneth Friedman and Rosemary Underhill are available for viewing and printing on our Youth Corner page.


NJCFSA Fundraising Projects:


CFS Blue Ribbon Awareness Pins
1” high x ¾ “ wide
$3.00 each plus $2.50 Shipping and Handling
($.50 extra for S&H each additional pin purchased at that time) 
 

 

 Please send check made out to “NJCFSA, Inc.” to

NJCFSA – Blue Ribbon Pin
PO Box 477
Florham Park, NJ 07932
 


Use GoodSearch & Raise Funds for NJCFSA

You can help support the New Jersey Chronic Fatigue Syndrome Association by searching the Internet or shopping online with GoodSearch- www.goodsearch.com powered by Yahoo! Each search will result in a donation to NJCFSA! Visit the GoodSearch website for instructions on how to participate.


 Seaside Park Travel will give NJCFSA 50% of its travel commissions for your trip

Book your leisure travel through Seaside Park Travel. Tell your friends, and you and they can get a great price and support NJCFSA at the same time! Just tell Seaside Travel that you want to support NJCFSA when you book your trip. They can handle all types of leisure travel including cruises, tours and hotel arrangements. Contact:
Paul Cunningham
Seaside Park Travel
131 K Street
Seaside Park, NJ 08752-1319
Telephone:  1-732-854-7137
Fax: 1-732-793-0594
Website: www.cruiseformycharity.com
Email: paulc@cruiseformycharity.com

 


A Consensus Manual for the Primary Care and Management of Chronic Fatigue Syndrome

Anyone may download an electronic copy of the Manual in Adobe Acrobat® Reader portable document format (PDF).  To view the manual, Acrobat Reader software, available free from Adobe , is required.  Download the CFS Manual (PDF file size 785K) at CFS Consensus Manual.pdf.

A translation of the manual in Japanese is now available here.

Physicians only:  a  limited number of printed copies are now available for physicians.  Please call the NJCFSA Helpline at 888-835-3677.


Check out our newYouth Corner for Children, Adolescents and Young Adults.

Also read testimony from the CFS Advisory Committee meeting, January 10, 2005: 

What NJCFSA Has Done For Children


"WRITE NOW:a Guide  to Maintaining a Creative Spirit Through Writing"

by former NJCFSA trustee and long time member Susan Dion is now available for downloading onto your computer. Click here for all the information.


NJCFSA CONTACT INFORMATION

 

NJCFSA
PO Box 477
Florham Park, NJ 07932

 
Email Contact : Peg Walk

 

NJCFSA Helpline: 888-835-3677 during business hours.

Thank you for visiting.

Contact Webmaster


Disclaimer: The ideas expressed by each author, quoted individual or person posting on this web site are strictly his or her own. Some of the information contained herein is intended to help persons with CFIDS & FM make informed decisions about their health. However, The New Jersey Chronic Syndrome Association, Inc. and the creator of this web site do not dispense medical advice or endorse any specific medical hypothesis or product and assume no responsibility for any medical treatment or other activity undertaken by visitors to this web site. For medical advice please consult your healthcare provider. Furthermore this web site may contain numerous links to third party Web Sites and paid advertisements. The New Jersey Chronic Syndrome Association, Inc. and the creator of this web site do not control or endorse the content of third party Web Sites or products and services offered by advertisers. This information is provided as a service and not as a recommendation.


Home | FAQ | Inspiration | Archive | Library   | Meetings | Conference | Newsletter | Links | Join