CFS RESOURCE LIST

MANUALS

A Consensus Manual for the Primary Care and Management of Chronic Fatigue Syndrome, Edited by Joseph F. John, Jr., M.D. & James M. Oleske, M.D., MPH, The Academy of Medicine of N.J., The University of Medicine and Dentistry of N.J., The N.J. Department of Health & Senior Services, copyright 2002, the manual is now out of print but it is available free by download, at  CFS Consensus Manual.pdf.


BOOKS

Cellular Hypoxia and Neuro-Immune Fatigue, Myalgic Encephalomyelitis, Chronic Fatigue Syndrome, Fibromyalgia, Orthostatic Intolerance/Dysautonomia, Multiple Chemical Sensitivities, Chronic Lyme Disease, David S. Bell, MD, FAAP, 2007

Defeat CFS: You Don’t Have to Live With It-An Eight Step Protocol, Martha E. Kilcoyne, 2007

The Feel-Good Guide to FM & CFS: A Comprehensive Resource for Recovery, Lynette Bassman, PhD, 2007

Chronic Fatigue Syndrome for Dummies, Susan R. Lisman, M.D., Karla Dougherty, 2007

Sacred Space: ME/CFS, Depression, Anxiety and Stress-A Guide to Healing & Recovery, Elizabeth Bailey 2006

Handbook of Chronic Fatigue Syndrome, Leonard A. Jason, PhD, Patricia Fennell, Renee Taylor, PhD

Chronic Fatigue Syndrome, A Biological Approach, Edited by Patrick Englebienne & Kenny DeMeirleir

Encounters with the Invisible: Unseen Illness, Controversy, and Chronic Fatigue Syndrome, Dorothy Wall

Harnessing the Wind, CFS and My Son, Shanon McQuown

Chronic Fatigue Syndrome, Fibromyalgia, and Other Invisible Illnesses: A Complete and Compassionate Guide, Katrina Berne, PhD & Daniel Peterson M.D.

A Parent’s Guide to CFIDS, How to be an Advocate for your Child with Chronic Fatigue Syndrome, David S. Bell, M.D., Mary Robinson, MSEd, Jean Pollard, AS, Tom Robinson, MS, CAS, Bonnie Floyd, M.A.

When I Cry Wolf: A Society Lost to Chronic Fatigue Syndrome and Mold, Sharon Kirk, PhD

Nothing Short of a Miracle: One Woman’s Journey Through Chronic Fatigue Syndrome, Fibromyalgia, Chiari Malformation, Nelma Jean Bryson

Chronic Fatigue Syndrome: A Treatment Guide, Erica Verillo & Lauren Gelman

A Clinician’s Guide to Controversial Illnesses: Chronic Fatigue Syndrome, Fibromyalgia, and Multiple Chemical Sensitivities, Renee Taylor, PhD, Fred Friedberg, PhD, & Leonard Jason, PhD

Chronic Fatigue Syndrome, Genes, and Infection, Roberto Patarca-Montero, M.D.

Chronic Fatigue Syndrome and the Body’s Immune Defense System, Roberto Patarca-Montero, M.D.

Concise Encyclopedia of Chronic Fatigue Syndrome, Roberto Patarca-Montero, M.D

We’re Not in Kansas Anymore, CFS & The Politics of Disease, Rik Carlson

Making the Best of Orders to Rest, A Path To Peace For the Chronically Ill, Annabel Hobbs

Parting the Fog: The Personal Side of Fibromyalgia/Chronic Fatigue Syndrome, Sue Jones

Treating and Beating Fibromyalgia and Chronic Fatigue Syndrome: The Definitive Guide for Patients and Physicians, Dr. Roger H. Murphee

Living Well with Chronic Fatigue Syndrome and Fibromyalgia: What Your Doctor Doesn’t Tell You…That you Need To Know, Mary J. Shoman

The Doctor’s Guide To Chronic Fatigue Syndrome, David S. Bell, M.D.

Treatment of Chronic Fatigue Syndrome in the Antiviral Revolution Era, Roberto Patarca-Montero, M.D.

CFIDS-Fibromyalgia, and the Virus-Allergy Link, R. Bruce Duncan

Chronic Illness Workbook: Strategies and Solutions for Taking Back Your Life, Patricia A. Fennell

The Polio Paradox: Uncovering the Hidden History of Polio to Understand and Treat “Post-Polio Syndrome”,and Chronic Fatigue, Richard L. Bruno, PhD

Adolescence and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, “Journey with the Dragon”, Naida Edgar Brothrston, MSW, RSW

Finding Strength in Weakness, Help and Hope for Families Battling CFS, Lynn Vanderzalm

From Fatigued to Fantastic, Jacob Teitelbaum, M.D.

Running on Empty, The Complete Guide to Chronic Fatigue Syndrome, Katrina Berne, PhD

Hope and Help for Chronic Fatigue Syndrome, Karyn Feiden

Stricken, Voices from the Hidden Epidemic of Chronic Fatigue Syndrome, Peggy Munson

If You Would Just Get Out of Bed, Stephanie Kelley

Chronic Fatigue Syndrome Handbook, Derek Englander, M.D.

Chronic Fatigue, Fibromyalgia & Environmental Illness, Burton Goldberg

Alternative Treatments for Fibromyalgia & CFS, 2nd Edition, Mari Skelly & Helen Walker

Chronic Fatigue Syndrome and the Yeast Connection, William G. Crook, M.D.

Chronic Fatigue Syndrome, Getting Well Naturally, Michael T. Murray, N.D.

Coping with Chronic Fatigue Syndrome, Nine Things You Can Do, Fred Friedberg, PhD

Nolo’s Guide to Social Security Disability: Getting and Keeping Your Benefits, 2nd Ed, David A. Morton, M.D.


JOURNALS

Journal of Chronic Fatigue Syndrome, Haworth Medical Press, 10 Alice Street, Binghamton, N.Y. 13904 Phone 1-800-429-6784,  http://www.HaworthPress.com

Special Note:  Applicants for the New Jersey Medical School Chronic Fatigue Syndrome (CFS) Scholarship may wish to access websites in the initial stages of their learning about CFS.  Applicants may not cite websites as references in the application essays they submit.  Applicants are encouraged to cite primary literature is their essays:  articles from reputable journals and chapters from books published by reputable publishers.


WEBSITES

http://www.njcfsa.org  New Jersey Chronic Fatigue Syndrome Association, Inc.

http://www.cfids.org   CFIDS Association of America

http://www.iacfsme.org/   International Association for Chronic Fatigue Syndrome, CFS Case Definitions

http://njms.umdnj.edu/centers_institutes/pain_fatigue/   University of Medicine and Dentistry of New Jersey Pain and Fatigue Study Center

http://www.ct-cfids-fm.org   Connecticut CFIDS & FM Association, Inc.

http://www.dfwcfids.org   Dallas/Fort Worth CFS & FM Support Group

http://www.masscfids.org   Massachusetts CFIDS Association

http://www.wicfs-me.org   Wisconsin CFS Association, Inc.

http://www.ndrf.org   National Dysautonomia Research Foundation

http://cf-alliance.tripod.com   CF Alliance, New York

http://www.mefmaction.net   National ME/FM Action Network, Canada

http://www.cfidsselfhelp.org   Bruce Campbell, CFIDS & Fibromyalgia Self Help

http://www.chronicfatiguesupport.com   ProHealth, Online source of support

http://www.co-cure.org  Listserve and CFS/FM Information Exchange Forum, Online research and activism articles

http://chronicfatigue.about.com

http://www.monkeyswithwings.com/vtcfids.html   Vermont CFIDS Association, Inc.

http://pandoranet.info   P.A.N.D.O.R.A., Inc.,   Florida Patient support organization.

 

FEDERAL GOVERNMENT CFS WEBSITES

http://orwh.od.nih.gov/cfs.html   Office of Research on Women’s Health, Trans-NIH Working Group

http://www.cdc.gov/cfs/   Centers for Disease Control (CDC) CFS Research page

http://www3.niaid.nih.gov/   National Institutes of Health (NIH)

http://www.hhs.gov/advcomcfs   U.S. Department of Health & Human Services CFS Advisory Committee

 


PEDIATRIC WEBSITES

http://www.cfids.org/youth.asp   CFIDS Association of America, Youth Alliance

http://www.pediatricnetwork.org   Pediatric Network for CFS/FM/OI, Rebecca Moore, Mary Robinson

http://www.dynakids.org   Dysautonomia Youth Network of America, Inc.

International Association for CFS/ME, Pediatric Case Definition, 2007

 


NEWSLETTERS
New Jersey CFS Association, Inc., P.O. Box 477, Florham Park, N.J. 07932 phone 888-835-3677, annual membership $30.00

CFIDS Association of America, P.O. Box 220398, Charlotte, North Carolina, 28222 phone (800) 422-3437, annual membership: $35.00

International Association for CFS (IACFS), 27 N. Wacker Drive, #416, Chicago, Ill. 60606 phone (847) 258-7248, cost: $40.00 patient membership

Connecticut CFIDS & FM Association, Inc., P.O. Box 3010, Milford, CT  06406 phone (800) 952-2037, annual membership: $25.00

CFS/FM Support Group of Dallas/Fort Worth, Texas, P.O. Box 433, Grapevine, Texas 76099 phone (817) 303-4851, cost: Free, website newsletter

Wisconsin CFS Association, Inc. 747 Lois Drive, Sun Prairie, WI 53590  phone (608)834-1001, annual membership fee: $25.00

CF-Alliance, P.O. Box 9204, Bardonia, N.Y. 10954, cost: Free

National ME/FM Action Network, 3836 Carling Ave., Nepean, ON, K2K 2Y6 Canada, phone (613)829-6667, annual membership fee: $25.00

Previous Scholarship Winners and the Winning Essays


Home | FAQ | Inspiration | Archive | Library   | Meetings | Conference | Newsletter | Links | Join