May 2007
                                                                                                     Vol. IV, Issue #40
Ribbon
           Bergen CFS-FM Support Group Newsletter

Meeting Report
First, let me remind you that the June meeting is held on the second Sunday of the month.  That will be June 10th.   This will be a short newsletter since it is getting close to the next meeting date and I want to remind you of that date.
 
For those who are interested, there will be informal gatherings in July and August.  More info will be included in the June newsletter.
 
The May meeting featured conversation followed by the video “Fibromyalgia: Show Me Where It Hurts.”  The majority enjoyed, it but a few were disappointed by the reference to stress as a possible cause for pain.  Co-leader Nancy reminded them that stress can be physical, environmental, and not just emotional. Some who viewed it thought it was groundbreaking information.
 
There was also a discussion about the work being done by Dr. Benjamin Natelson and his colleagues at the CFS Pain and Fatigue Study Center - 973-972-4800.  For more information about the current studies you can call or go to www.umdnj.edu/cfsweb/CFS.  Basic information about the center is included below.
 
In discussing our parent organization, the NJCFSA, we encouraged our members to consider joining the NJCFSA.  A membership form is included at the end of this mailing. 
 
FYI
New Jersey Chronic Fatigue Syndrome Fibromyalgia Center
At the forefront of CFS/FM research and treatment since its establishment in 1989, the New Jersey CFS/FM Center is located at the University of Medicine and Dentistry of New Jersey in Newark, NJ and the East Orange VA Medical Center.
Patients with Chronic Fatigue Syndrome and Fibromyalgia often present with similar symptoms. A CFS patient primarily complains of fatigue, while pain is the major concern of the patient suffering from FM. Often, both fatigue and pain are present in these conditions.
The New Jersey CFS/FM Center is composed of two branches -- Research and Private Care. To become involved please click the link below.
HOW TO GET INVOLVED
http://www.umdnj.edu/cfsweb/CFS/cfsresearch.html#GetInvolved
Goals
·    Provide evaluation, diagnosis, and treatment of persons with CFS and FM through a multidisciplinary approach. 
·    Perform research to find the underlying causes of CFS and FM and effective treatments of the debilitating symptoms associated with these illnesses. 
·    Educate patients, families, health care professionals, and the general public about research, treatment practices, and coping techniques. 
News
·    Recent article on Research on Medically Unexplained Fatigue and Pain by Dr. Natelson (UMDNJ Research Magazine featuring NIH-Supported Clinical Trials, Fall 2005).
·    Dr. Natelson receives federal funding to study Sleep and Cytokine in CFS.
·    See Dr. Natelson's last book "Facing and Fighting Fatigue: A Practical Approach"
·    John Wiley and Sons to publish Dr. Natelson's new book, "The Nothing Wrong Syndrome".
·    See our newest staff roster.
·    CFS/FM center faculty also conducts research on Gulf War Illness. Check out the activities at the War Related Illness and Injury Study Center WRIISC.
·    Our news page... all the world's CFS/FM news, all the time....
 
Questions?  Comments? Want to be on our mailing list? Please call us at (973) 972-4800, or contact us by e-mail.
 
               
             
Next Meeting
The next meeting will be Sunday June 10th at Pascack Valley Hospital from 2-4 PM. 
 
 
This newsletter is intended for CFS patients in the area of this support group.  The purpose is to share information and support.  If you have questions about meetings please contact: Pat LaRosa at pat@larosas.net, Nancy Visocki at ngv.njcfsa@verizon.net, Judy Machacek at judymachek@msn.com or Frank Kawa at 201-768-4111.
                
 
 
 
 
 

MEMBERSHIP & CHARITABLE CONTRIBUTION FORM

2007 Annual Membership Dues:    ___ New member   ___ Renewal……….    $     25.00
 
Tax Deductible Contribution:   ___ $25  ___ $50  ___ $100 ___ other………………...…...   $________
 
Apply my contribution to                 ___ General Fund                          ___High School Scholarship
                                                              ___ Research                   ___Medical School Scholarship
 
*The General Fund supports the daily activities of the organization.
*Become a Pillar of NJCFSA: Contribute $100 or more to the general fund.
*Contributions will be gratefully acknowledged in the NJCFSA newsletter unless requested otherwise.
 
                              Total Membership Fee and Charitable Contribution Enclosed………       $________
(Please note: members who request reduced dues must return this renewal form to continue membership. Please consider that we need your membership dues to continue to provide ongoing services and benefits to our members. Fill in amount paid above. Please indicate why you request reduced dues on the line below.)
______________________________________________________________________________________
 Member Information & Renewal Date*:
*Do you have a question regarding your renewal date?
The membership renewal date is the month you first joined NJCFSA. The date is circled on your printed label, along with the year you last paid, i.e. 1/2004 means you joined in January and paid in 2004 for the 2004-2005 membership year.
 
Please Circle One:   PATIENT    SUSPECTED PATIENT    FAMILY    FRIEND    OTHER__________
 
New Member (or changes to a current member’s) Information:
 
Name________________________________________     Phone (____) ___________________
 
Address______________________________________    County ________________________
 
City _____________________________________  State _______    Zip Code______________________
 
Email ___________________________
Are you a member of a local NJCFSA support group?  If so, which county? _________________________
 
To join our Telephone Support Network so that you can speak with other members, please sign below.
 
     
Signature for Telephone Support Network. The NJCFSA library catalog is on our website. Updates to the catalog are printed in our newsletter.
If you still want to receive a printed copy, please check here_________.
 
 
 
We need your help to keep NJCFSA running smoothly.  Listed below are some volunteer opportunities. These can be one time commitments or longer if you are able to help more.  Please check all the ways you would be interested in helping us.
 
_____ Board member of NJCFSA
 
_____Coordinate Volunteers
 
_____Conference Coordinator
 
_____Conference Committee Member
 
_____Coordinate Newsletter
 
_____Write for newsletter
 
_____Help with mailings
 
_____Post posters and notices in your community
 
_____Advertise our conferences and other events
 
_____Ideas for fundraisers
 
_____Help with fundraisers
 
_____Find corporate sponsors for our conferences and other programs
 
_____Grant writing
 
_____Lead a support group in your area
 
_____Begin an informal phone support group
 
_____Other: Please explain _________________________________________
 
 
 
 

Please send form and dues to:
 NJCFSA, Inc. P.O. Box 477, Florham Park, NJ 07932
Phone (609) 219-0662 – http://njcfsa.org