Vol. II, Issue #18
Bergen CFS Support Group Newsletter
was held on Sunday May 15th. Our attendees included family
members who came to learn about CFS and how it affects our family and
social relationships. We commend them for
showing support for their loved ones. Our
speaker Lois Weissman, NP-C, RN,MS is a therapist who specializes in
helping people with chronic disease. She
addressed the need for understanding and acceptance among family and
Weissman is available for office hours at UMDNJ. Parking is easy
and safe and the building complex is just off Route 280.
She hopes to open an office in
Lois Weissman, NP-C, RN, MS
Judy Machacek provided information about massage and Tai Chi Chih availability.
Student massages available for $30 - cash only - on Thursday and Friday afternoons and Saturday mornings.
You must call in advance for an appointment.
Chih Practice outdoors at
hosted by Val Drucker 201-444-8641
Sunday mornings at 9:30 AM in June: 6/5, 6/12, 6/19, 6/26
Free and open to anyone.
CFS Awareness Day
Letter Campaign – If you participated, please let us know how many
letters you sent. We are trying to get an
idea of the extent of our involvement. If
you have email please send the number to me firstname.lastname@example.org. If you are a
This is an update from Patti Caprio, the organizer of the Million Letter Campaign. http://www.fms-help.com/letter.htm .
UPDATE ON THE MILLION LETTER CAMPAIGN
Pattie Caprio, MLC Founder, stated: "I received two calls today (
3. An MLC participant reported: "I wrote my letter to everyone that was suggested on the website, and more! This past Saturday, I received a 'Proclamation' from our Governor Ernie Fletcher from the
4. An article
appeared in the Town Times,
5. Another report
6. From Pattie
Caprio (May 17, 2005) - ATTORNEY
MICHAEL J. HALLER, JR., who composed and mailed a
powerful letter for the Million Letter Campaign top five addresses,
phoned this morning. Attorney Haller has agreed to have copies of his
letters sent to all the Senators who work on SSD laws along with our
MLC letters. He informed me that he was just in
7. More good
news! This is from a Million Letter Campaign worker: On
If you participated in the Million Letter Campaign and receive a RESPONSE from ANY of the addresses below, PLEASE CONTACT MLC FOUNDER, PATTIE CAPRIO, AT email@example.com IMMEDIATELY! They will be reported here on this website.
More Awarenss Day News
President & CEO
of The CFIDS Association of America, Kim McCleary, reports that the May
12th Virtual Lobby Day resulted in 2,516 messages being sent from the
In the June issue of Psychology Today, which is on newsstands now, there’s an article entitled “Is It All in My Head?” It reinforces the idea that CFS, or CFIDS, is caused by stress, the mind, or a patient’s illness belief system. All these concepts are integrated into the article. For more information please see the CFIDS site @ http://capwiz.com/cfids/issues/alert/?alertid=7635331&type=CU The CFIDS organization is asking that we respond to the article. At this website, you will be able to send a comment online. The magazine should be available in most libraries.
[I read the Psychology Today article prior to the CFIDS outcry and was very distressed by the image and explanations presented by the author. I can only imagine how upset those who were interviewed must be. They have worked so hard to dispel the notion that “it is all in your head”. Pat LaRosa, editor]
Pain Relief –Possible Consideration
Over the last couple of years, this support group has offered a variety of alternative methods of possible symptom control. The following article addresses another option that may be useful for some of you. TENS is a prescription item and is covered by most medical plans. Some will pay for it while others will rent it for the patient. Most units are small and portable and can be concealed beneath clothing.
Transcutaneous Electrical Nerve Stimulation (TENS)
An At-Home Approach To Managing Pain
By Lisa Ellis InteliHealth Staff Writer
What is TENS?
Transcutaneous electrical nerve stimulation (TENS) is a drug-free method of pain relief that has been used to treat a wide variety of muscle and joint problems, as well as many other painful conditions. TENS uses electrical impulses to stimulate the nerve endings at or near the site of pain, diminishing the pain and replacing it with a tingling or massagelike sensation.
TENS can be used in a health-care setting, but most often the patient uses it at home.
How does TENS work?
Researchers still are not certain exactly how TENS works. The two explanations suggested most often are that electrical stimulation of the nerves blocks the pain sensation and that TENS triggers the release of the body's natural painkillers, called endorphins.
A TENS device consists of an adjustable power unit and electrodes that attach to the power unit via wires.
Before beginning treatment, the patient must put the electrodes in place — usually on top of or next to the painful area. Patients can experiment with different locations for the electrodes to see what provides the best pain relief. In some cases, it may be more effective to position the electrodes on top of a related nerve or a site that is considered to be a trigger point or acupuncture point for the painful area.
Are there different types of TENS?
Electrical stimulation can be used in the following ways:
How effective is TENS?
TENS has been used in patients with muscular pain, osteoarthritis, rheumatoid arthritis, sciatica, pain after surgery and other conditions.
Studies have shown varying results as to how well TENS works, what types of pain it can best relieve and how long the relief lasts. Many people have found TENS helpful, however, and many doctors recommend it as part of an overall pain-management program.
What are the advantages and
disadvantages of TENS?
The next scheduled meeting will be on Sunday June 12th. Please note that this is the SECOND Sunday of the month – so that we do not interfere with Father’s Day festivities. We plan to show a portion of the spring conference at that meeting. This will be the final meeting of the season.This newsletter is intended for CFS patients in the area of this support group. The purpose is to share information and support. If you have questions about meetings please contact Group Leader Anne at firstname.lastname@example.org or email@example.com. Subscription problems: Nancy Visocki at firstname.lastname@example.org. Editor: Pat LaRosa at email@example.com.