Vol. II, Issue #13
Bergen CFS Support Group Newsletter
The meeting was held on Sunday December 19th. This was an informal gathering to celebrate the holidays – whichever holiday one celebrates. It was a smaller group than we have seen recently, but the number gave those in attendance an opportunity to get to know one another and to share some coping skills. The food on the sharing table was incredible. A catering service could not have provided a tastier or more eye-appealing selection.
This article may be of
interest to some of you. It is from www.ImmuneSupport.com.
Persons with CFIDS (PWCs) may represent a sizable group within those improperly denied benefits. The investigation found that Unum relied solely on their in-house physicians and often failed to consider both physical and psychological conditions in determining whether to deny or terminate benefits. Scores of PWCs have reported these problems in their dealings with Unum and other insurers now owned by Unum.
We’ve covered some of these stories in the CFIDS Chronicle over the years. Unum insures 25 million people, through individual and group policies written by: Unum Life Insurance Co. of America, the Paul Revere Life Insurance Co., the Provident Life and Casualty Insurance Co., Provident Life and Accident Insurance Co., and the First Unum Life Insurance Co.
If you have been denied benefits under a Unum-held policy, contact your disability attorney or visit http://www.unum.com/newsroom/news/corporate/11302004_settlement.asp for details about the reconsideration process. The National Organization of Social Security Claimants Representatives provides a network of attorneys specializing in disability law. You can reach their referral service at 800-431-2804.
CFS Awareness Day
This is being called the Million Letter Campaign. In next month’s issue we will give you more details and all the addresses. What you can do now is start to work on your letter. While most of us could write a book about our illness, we are being asked to keep it to one page.
Your letter should include: 1) Your occupation and achievements before you became ill
2) The date of onset and what you think might have been the cause
3) Your symptoms
4) How the illness has affected your career, finances, relationships, and family
5) What is being sought (You may include these or your own concerns).
Recognition for the illness,
For doctors and lawyers to take the disease seriously in disability cases
Understanding from family and friends
Research money toward a cure
Points to Ponder
This info came from www.Immunesupport.com.
CFIDS advocates have used the Association’s
An Action Alert! sent out on Nov. 19 asked advocates to contact Fox network affiliates about a new TV medical drama, House. The show included a segment about CFIDS/FM that reinforced negative stereotypes. Within three days, nearly 1,000 letters were sent by advocates in response.
The power of the internet and the passion of CFIDS advocates create a potent force. To learn more, click on the Capitol building icon on the Association’s home page (www.cfids.org). There you’ll find numerous Action Alerts! and sample letters to facilitate your responses. Sign up for the listserv and be among the first to learn of timely opportunities to take action.
The next scheduled meeting
is January 16th from at
Our guest presenter will be Ken Andes, a licensed acupuncturist and herbalist,
demonstrating Tai Chi exercises that can be done while sitting. We are pleased that
Ken has agreed to make this return visit to our meeting. Please remember that our
meetings are fragrance free and smoke free.
Happy New Year
This newsletter is intended for CFS patients in the area of this support group. The purpose is to share information and support. If you have questions about meetings please contact Group Leader Anne at firstname.lastname@example.org or email@example.com. Subscription problems: Nancy Visocki at firstname.lastname@example.org. Editor: Pat LaRosa at email@example.com.