#GivingTuesday

This is the season of giving. Tuesday is National Day of Giving!

Be a part of #GivingTuesday – DONATE to NJME/CFSA!

NJ/MECFSA is a 501(c)(3) non-profit organization.

DONATE at http://www.njcfsa.org/donate/

If you prefer there is also https://www.gofundme.com/ArpitaSheth-MyME (funds also go directly to the organization

Scholarships

The 2016 Scholarships have been posted.  Click on the “Scholarships” tab above.  The Medical Scholarship winner and runner-up essays are at that site.

Research Opportunity

See a research candidate request from Leonard Jason

Click on the Research Opportunities tab at the top of this page.

 

Info from Bateman Horne Center

Simple Way to Assess Orthostatic Intolerance

Gene Study

Dr. Nancy Klimas’ ME/CFS Gene Study at Nova Southeast University is still seeking patient and healthy volunteers. If you are interested, you can send a message to Helpdesk@njmecfsa.org and we will forward it to the study. More information can be found at https://sharkmedia.nova.edu/m…/ME+CFS+Genes+Study/1_06vh90p0

This is a chance for both patients and healthy volunteers to participate.

Follow-Up to Letter to NIH Director Collins

Read about the encouraging results at:

http://www.meaction.net/2016/09/09/members-of-congress-urge-nih-director-francis-collins-to-strengthen-biomedical-research-into-myalgic-encephalomyelitis-chronic-fatigue-syndrome/

Missing Millions – Part 2

Calling all ME patients, allies, family, friends, caregivers, medical providers and researchers: Let’s join together to make this invisible illness visible! Please join us in Morristown, NJ for two hours on September 27th (location TBD).
#MillionsMissing and www.njmecfsa.org is dedicated to the millions of Myalgic Encephalomyelitis (also known as Chronic Fatigue Syndrome) patients missing from their careers, schools, social lives and families due to the debilitating symptoms of the disease. At the same time, millions of dollars are missing from research and clinical education funding that ME should be receiving. And millions of medical providers are missing out on the proper training to diagnosis and help patients manage this illness.
You may also RSVP and follow updates here: https://www.facebook.com/events/1229769917081008/
#MillionsMissing is dedicated to the millions of Myalgic Encephalomyelitis (also known as Chronic Fatigue Syndrome) patients missing from their careers, schools, social lives and families due to the debilitating symptoms of the disease. At the same time, millions of dollars are missing from research and clinical education funding that ME should be receiving. And millions of medical providers are missing out on the proper training to diagnosis and help patients manage this illness.
You may also RSVP here: https://my.meaction.net/events/millionsmissing-awareness-day-morristown-nj

First Approved ME/CFS Treatment in the World

Hemispherx Biopharma Announces Major Breakthrough:
Approval for Commercial Sale of Rintatolimod (U.S. Tradename: Ampligen®) to Treat Severe Cases of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) in the Argentine Republic First Product Approved for ME/CFS Indication Anywhere in the World.

Ampligen Approved in Argentina – First in the World 2016-08-23

2016 Membership Renewal

August is Membership Renewal Month

Please support the work of NJME/CFSA.  See information at the link below.

2016-08 Membership Renewal Request

Announcing the Winners of ‪#‎MEAction‬’s Poetry Contest!

Link includes the 10 poems. http://bit.ly/1UICjb5
i.e. http://www.meaction.net/…/…/meactions-poetry-contest-winners