Follow-Up to Letter to NIH Director Collins

Read about the encouraging results at:

http://www.meaction.net/2016/09/09/members-of-congress-urge-nih-director-francis-collins-to-strengthen-biomedical-research-into-myalgic-encephalomyelitis-chronic-fatigue-syndrome/

Missing Millions – Part 2

Calling all ME patients, allies, family, friends, caregivers, medical providers and researchers: Let’s join together to make this invisible illness visible! Please join us in Morristown, NJ for two hours on September 27th (location TBD).
#MillionsMissing and www.njmecfsa.org is dedicated to the millions of Myalgic Encephalomyelitis (also known as Chronic Fatigue Syndrome) patients missing from their careers, schools, social lives and families due to the debilitating symptoms of the disease. At the same time, millions of dollars are missing from research and clinical education funding that ME should be receiving. And millions of medical providers are missing out on the proper training to diagnosis and help patients manage this illness.
You may also RSVP and follow updates here: https://www.facebook.com/events/1229769917081008/
#MillionsMissing is dedicated to the millions of Myalgic Encephalomyelitis (also known as Chronic Fatigue Syndrome) patients missing from their careers, schools, social lives and families due to the debilitating symptoms of the disease. At the same time, millions of dollars are missing from research and clinical education funding that ME should be receiving. And millions of medical providers are missing out on the proper training to diagnosis and help patients manage this illness.
You may also RSVP here: https://my.meaction.net/events/millionsmissing-awareness-day-morristown-nj

First Approved ME/CFS Treatment in the World

Hemispherx Biopharma Announces Major Breakthrough:
Approval for Commercial Sale of Rintatolimod (U.S. Tradename: Ampligen®) to Treat Severe Cases of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) in the Argentine Republic First Product Approved for ME/CFS Indication Anywhere in the World.

Ampligen Approved in Argentina – First in the World 2016-08-23

2016 Membership Renewal

August is Membership Renewal Month

Please support the work of NJME/CFSA.  See information at the link below.

2016-08 Membership Renewal Request

Announcing the Winners of ‪#‎MEAction‬’s Poetry Contest!

Link includes the 10 poems. http://bit.ly/1UICjb5
i.e. http://www.meaction.net/…/…/meactions-poetry-contest-winners

Medical Scholarship – See Scholarships tab at top of this page

2016 Medical Scholarship Flyer

Facebook Posts

Be sure to check out the NJME/CFSA Facebook page regularly for recent posts.

https://www.facebook.com/New-Jersey-Chronic-Fatigue-Syndrome-Association-Inc-NJCFSA-141665745869451/

Trustee Kenneth Friedman, PHD participated in ME/CFS Awareness Day Panel

ImmuneDysfunction.org celebrated ME/CFS Awareness Day in the U.S. (May 12th, 2016) by holding a live television panel discussion concerning ME/CFS and Lyme disease on CCTV in Burlington, VT. I was honored to be included in the panel which consisted of physicians, an ME/CFS research and a VT State Senator; all of whom informed the audience of their perspectives on these illnesses. For a look at the discussion, see

https://www.facebook.com/New-Jersey-Chronic-Fatigue-Syndrome-Association-Inc-NJCFSA-141665745869451

Governor Christie Declares May 2016 ME/CFS Awareness Month

Proclamation 2016

High School Scholarship Application

2016 HS Scholarship Application