“Unrest” Presentation – Additional Info added 8/30/2017

SAVE THE DATE!

The award-winning documentary “Unrest”  will be presented on Sunday 10/15/ 2017 – 2 PM at Hackensack UMC at Pascack Valley 250 Old Hook Road, Westwood, NJ. http://NJ http://www.hackensackumcpv.com/directory/directions/

Don’t miss the opportunity to see this acclaimed documentary!

Video Previewhttps://m.youtube.com/watch?v=MWIc9mKedF4

Presented by Bergen ME/CFS/FM Support Group and NJME/CFSA.Additional Information – 8/30/2017

UNREST describes the physical and emotional journey of one woman’s experience with a debilitating illness. Jen Brea, a Harvard Graduate, documents her struggle to find a diagnosis, her discovery of ME/CFS and chronicles the story of people around the world who also live with this illness. This movie illustrates the lack of knowledge and treatment options by our medical professionals for  ME/CFS patients. Through perseverance and the support of her family, Jen Brea documents her struggle for a better life. Her goal is to take the discussion of ME/CFS beyond the darkened bedrooms  of patients and to share this movie across the country and around the  world. Jen hopes to raise awareness,  increase research,  to achieve validation of MECFS and ultimately to find a cure .

Please RSVP to UNRESTRSVP@gmail.com if you can join us  on Sunday October 15. 2017 at 2 pm.  We need to track the number of attendees. This event is Free. Donations are welcome.  There is no penalty if you need to cancel.  We need to have an idea of the number who will attend.

 

Researchers Identify Biomarkers Associated with Chronic Fatigue Syndrome Severity

July 31, 2017

Researchers at the Stanford University School of Medicine have linked chronic fatigue syndrome to variations in 17 immune-system signaling proteins, or cytokines, whose concentrations in the blood correlate with the disease’s severity.

The findings provide evidence that inflammation is a powerful driver of this mysterious condition, whose underpinnings have eluded researchers for 35 years. See full article

https://med.stanford.edu/news/all-news/2017/07/researchers-id-biomarkers-associated-with-chronic-fatigue-syndrome.html

SSA Fraud Alert!

NEW Pediatric Primer Published!

A new Pediatric Primer has been published.

Among the esteemed authors are NJME/CFSA Trustee Kenneth Friedman, PhD and former Trustee Dr. Rosemary Underhill.

It includes info for schools (not confined to the school section), discussion of Munchausen’s by proxy, the severely affected who can’t get to school as well as handouts for schools in the appendices.

http://journal.frontiersin.org/…/10.33…/fped.2017.00121/full

 

NJ Governor Christie signs Proclamation

2017 HS Scholarship Appliction Deadline extended to May 26th

Available at Scholarships tab above

Ryde4Life Program

We are sharing this information from the

Department of Human Services

Division of Senior Services

One Bergen County Plaza

Hackensack, New Jersey 07601

17_0329_Ryde4Life Program Brochure

 

2017 Medical Scholarship

Application available by clicking on the link above or the “Scholarships” tab at the top of this page.

ME and the PACE trial in the New York Times

David Tuller and Julie Rehmeyer have published an article in the New York Times about ME and the PACE trial.

https://www.nytimes.com/2017/03/18/opinion/sunday/getting-it-wrong-on-chronic-fatigue-syndrome.html?smid=tw-share&_r=0

 

#GivingTuesday

This is the season of giving. Tuesday is National Day of Giving!

Be a part of #GivingTuesday – DONATE to NJME/CFSA!

NJ/MECFSA is a 501(c)(3) non-profit organization.

DONATE at http://www.njcfsa.org/donate/

If you prefer there is also https://www.gofundme.com/ArpitaSheth-MyME (funds also go directly to the organization